Professeure de Psychologie sociale
Directrice Adjointe de l'Unité UMR 1296 « Radiations : Défense, Santé, Environnement »
- Intérêts
de recherche -
Le fondement des problématiques psychosociales de santé auxquelles nous nous intéressons est au coeur de trois types de questionnements : des questionnements théoriques, des problématiques de santé publique et la demande sociale qui émane du vécu des personnes concernées. L’ensemble de nos recherches vise à répondre à ces trois éléments et ces travaux sont menés dans une démarche de recherche que l’on pourrait qualifier de « socialement » utile. La démarche de recherche communautaire représente aussi un ancrage trés fort de l'approche que nous déployons au sein du PÔPS même si elle n'est pas systématique car tous les contextes ne sont pas identiques et il s'agit de déployer les approches les plus pertinentes dans le contexte social et sanitaire concerné. Les questions méthodologiques posées par les démarches de recherche communautaire sont largement questionnées et constituent un champ de recherche en soi, surtout dans le contexte actuel de déploiement de la démocratie sanitaire. Dans ce cadre, la psychologie sociale de la santé dispose de concepts, théoriques et méthodes particulièrement adaptés. Nos travaux s'inscrivent tant en prévention qu'en prise en charge des maladies chroniques mais aussi dans le cadre d'approche dites "One health" qui intègre des perspectives relatives aux santés environnementales et animales à la celle de la santé humaine.
- Publications
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Liste classée des publications
- Ouvrages scientifiques : 3
- Articles publiés dans revues indexées d'audience internationale : 152
- Chapitres d'ouvrage : 27
- Conférences invitées : 35
- Ouvrages
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Préau, M. & Siméone, A. (2018), De l'expertise scientifique à l'expertise profane. Postures, enjeux et méthodes dans le champ de la psychologie de la santé, Editions des archives contemporaines, Coll. «Psychologie du social», France, ISBN : 9782813003119, 125p., doi : 10.17184/eac.9782813003119
Henry, E., Demange, E., Préau, M., (2012). Guide méthodologique de la recherche communautaire. ANRS Editions.
Florin, A., Préau, M. (2011). Qualité de vie et Bien être. PUF
- Articles (sélection)
Bauquier, C., Ginguené, S., Leroy, T., Doumergue, M., Lebrun, N., Della Vecchia, C., Leveaux, S., Sagaon Tessier, L., Préau, M. (in press). Measuring reconceptualization and reprioritization during France’s first COVID-19-related lockdown in women with and without a history of cancer: an adaptation of the SeiQol-DW and PGI, Quality of Life Research.
Baillat, L., Bauquier, C., Pannard, M., Piton, M., Denuel, C., Sevenne, M., Gerard, A., Mouline, M., Jean Daubias, S., Jacob, G., Préau, M. (2023). Co-construire un projet de recherche en oncologie avec les personnes concernées : retour d’expérience et leçons apprises, Santé Publique, 35, 15-19.
Carpentier, Camille, Dima, A., Vollet, L., Chantre, R., Préau, M. (2023). La Recherche participative en aphasiologie : comment mobilisre les savoirs experientiels des soignants. Santé Publique, 35, 37-43.
Marmorat, T., & Préau, M. (2023). Quelle formation des savoirs sur le cancer et la chimiothérapie orale en contexte d’éducation thérapeutique ? Apports d’une approche psychosociale articulée à un dispositif de triangulation méthodologique. Psychologie Française. Doi : 10.1016/j.psfr.2023.08.001
Bauquier, C., Pannard, M., Baillat, L., Piton, M., Denuieul, C., Audouard, I., Jean Daubias, S., Mouline, M., Sevenne, M, Gerard, A., Préau, M. (2023). Le projet IMPAQT : réflexions sur un dispositif participatif de recherche. Psycho-Oncologie. 17(3), 191-194. https://doi.org/10.32604/po.2023.044552
Paunescu, A. C., Préau, M., Delpierre, C., Jacob, G., Pannard, M., Delrieu, L., & Kvaskoff, M. (2024). Quality of life among French breast cancer survivors in comparison with cancer-free women: the Seintinelles study. BMC women's health, 24(1), 17. https://doi.org/10.1186/s12905-023-02827-w
Paunescu, A. C., Delpierre, C., Jacob, G., Delrieu, L., Pannard, M., Préau, M., & Kvaskoff, M. (2023). Compliance with public health recommendations of cancer-free female research volunteers: the French Seintinelles study. Cancer causes & control : CCC, 23. doi.org/10.1007/s10552-023-01788-7
Mabire-Yon, R., … Préau, M. (2023). Is there a specific profile of Covid-19 risk perception among people with cancer? a cross-sectional study » Psycho-Oncologie. DOI: 10.32604/po.2023.042296
Paunescu, A. C., Préau, M., Jacob, G., Pannard, M., Delrieu, L., Delpierre, C., & Kvaskoff, M. (2023). Health behaviour changes in female cancer survivors: The Seintinelles study. Bulletin du cancer, 110(5), 496–511. https://doi.org/10.1016/j.bulcan.2023.02.00
Baillat, L., Vayre, E., Préau, M., Guérin, C. (2023). Burnout and Brownout in Intensive Care Physicians in the Era of COVID-19: A Qualitative Study. Int. J. Environ. Res. Public Health, 20, 6029. https://doi.org/10.3390/ijerph20116029
Della Vecchia, C., …, & Préau, M. (2023). Mid-term health-related quality of life in community-acquired bacterial meningitis survivors; the COMBAT study. PloS one, 18(3), e0281544. https://doi.org/10.1371/journal.pone.0281544
Perray, M., …., Préau, M. (2023). Benefits and challenges of a community-based programme for women living with HIV in Mali. AIDS care, 35(8), 1100–1106. https://doi.org/10.1080/09540121.2023.2208319
Mabire-Yon, R., ...., & Préau, M. (2023). Psychosocial factors involved in the very rare use of HIV testing among French MSM: a cross-sectional study. International journal of STD & AIDS, 9564624231155762. Advance online publication. https://doi.org/10.1177/09564624231155762
Puppo, C., Hansmann, Y., Moinot, L., Duval, X., Chirouze, C., & Préau, M. (2023). The social representations of diagnosing Lyme disease. PloS one, 18(2), e0276800. https://doi.org/10.1371/journal.pone.0276800
Piton, M., Della Vecchia, C., Alain, T., Mabire, R., Salcedo, M., Charpentier, N., Puppo, C., Petit, A.S., Carpentier, C., Perray, M., Mabire, X., Michels, D., Préau, M. (2022). Facteurs associés à la crainte élevée de l’infection COVID-19 : perceptions des PVVIH recrutés par réseaux communautaires. Santé Publique. 34(34), 771-781.
Della Vecchia, C., Préau, M., Haesebaert, J., Viprey, M., Rode, G., Termoz, A., Dima, A., Schott, A.M. (2022). Factors associated with post-stroke social participation: a quantitative study in view of the ICF framework. Annals of Physical and Rehabilitation Medicine. 29;101686. doi: 10.1016/j.rehab.2022.101686
Le Bonniec, A., Gourlan, M., Préau, M. Cousson-Gelie, F. (2022). Action Control of Colorectal Cancer Screening Participation, International Journal of Behavioral Medicine. Feb;29(1):122-130. doi: 10.1007/s12529-021-09976-y
Pannard, M., Leroy, T., Escriva-Boulley, G., Paquienseguy, F., Préau , M. (2022). Adoption des objets et applications de santé connectés chez les personnes entretenant un lien fort avec les questions de santé : le poids des émotions et des représentations sociales. Bulletin du Cancer. https://doi.org/10.1016/j. bulcan.2022.04.016
Della Vecchia, C., Girodet, M., Morin-Messabel, C., Ginguené, S., Carpentier, C., Leroy, T., Siméone, A., Vayre, E., Mabire, X., Ferraz, D., Préau, M. (2022). At the heart of the COVID-19 crisis: Perceived concerns of changes in long-term cancer care in French women with cancer. European Journal of Cancer Care. doi.org/10.1111/ecc.13599
Della Vecchia, C., ... Préau, M. (2022). French general practitioners’ willingness to prescribe mHealth devices and apps: a quantitative study. JMIR Mhealth, 11;10(2) doi :e28372. doi: 10.2196/28372.
Deneuve, S., … Préau, M. (2022). Oral cavity squamous celle carcinomas in patients with no identied risk factors: feeling like an outsider, European Journal of Cancer Care, doi.org/10.1111/ecc.13558
Mabire, X., Robin-Radier, S., Ferraz, D., Préau, M. (2021). FOREST Protocol: A qualitative study exploring health and sexuality of transmasculine individuals in France. BMJ Open, 11. e052748 DOI: 10.1136/bmjopen-2021-052748
Papot, E., Kalampalikis, N., Doumergue, M., Pilorge, F., Quatremere, G., Yazdanpanah, Y., Préau, M. (2021). Can we talk about price with patients when choosing antiretroviral therapy? A survey with people living with HIV and prescribers in France". BMJ Open. 11(11). e046212 10.1136/bmjopen-2020-046212
Bauquier, C., Pannard, M., Préau, M. (2021). The Seintinelles 2018 Barometer study: what is the profile of men who register on the Seintinelles collaborative research platform? results from a gendered analysis. Journal of Consumer Health on the Internet. 25(4):383-396. DOI: 10.1080/15398285.2021.1983714
Ringot, A., Préau, M., Piriou, V. (2021). Complementary and alternative medicine in cancer patients and randomized control studies. Bull Cancer. 108(1):102-116. doi: 10.1016/j.bulcan.2020.08.013
Escriva-Boulley, G., Mandrik, O., Préau, M., Herrero, R., Villain, P. (2021). Cognitions and behaviours of general practitioners in France regarding HPV vaccination: A theory-based systematic review. Preventive Medicine. doi: 10.1016/j.ypmed.2020.106323
Bauquier, C., et Préau, M. (2021). L'influence du sexe des élèves et du contexte scolaire de mixité/non-mixité sur l'élaboration du discours des adolescent·es au sujet de la vaccination contre l'infection papillomavirus humain. Genre Education et Formation. (5), 26-38. https://doi.org/10.4000/gef.665
Bauquier, C. & Préau, M. (2021). Contribution of HIV/AIDS-related human and social sciences research to a better understanding of the challenges of hepatitis B prevention, diagnosis and care, Microorganisms, 9(6), 1166, doi.org/10.3390/microorganisms9061166
Ferraz, D., ... Préau, M. (2021). Effects of the COVID-19 outbreak on the sexual and mental health of adolescent and adult men who have sex with men and transgender women participating in two PrEP cohort studies in Brazil - COBra Study. BMJ Open. 11:e045258. doi: 10.1136/bmjopen-2020-045258
Bauquier, C. & Préau, M. (2021). How French adolescents use images to represent HPV vaccination (during school-based workshops). Psychology and Health. Feb 9:1-16. doi: 10.1080/08870446.2021.1881519.
Di Ciaccio, M., ... Préau, M., Spire, B. (2021). Impact of HIV risk perception on both PrEP and condom use. Journal of Health Psychology. 26(10):1575-1586. doi: 10.1177/1359105319883927.
Viprey, M., … AM., Préau, M. (2020). A qualitative study of barriers and facilitators to adherence to secondary prevention medications among French patients suffering from stroke and transient ischemic attack. Patient Preference and Adherence, 14, 1213-1223, doi.org/10.2147/PPA.S257323
Pannard, M., Bauquier, C., Bassoleil, L., Sablone, L., Jacob, G., Reyal, F., & Préau, M. (2020). Ces citoyen·nes qui se portent volontaires pour participer aux recherches dans le champ du cancer - résultats du Baromètre Seintinelles 2018. Bulletin du Cancer, DOI:10.1016/j.bulcan.2019.11.012.
Puppo, C. (...), Préau, M. (2020). The quality of life of long-term remission patients in the Vivrovaire study: The impact of ovarian cancer on patient trajectory. Journal of Psychosocial Oncology, DOI:10.1080/07347332.2019.1710656
Le Bonniec, A., Préau, M., Cousson-Gélie, F. (2019). Représentations du dépistage organisé du cancer colorectal?: le point de vue des médecins généralistes. Santé Publique, S2(HS2):91, DOI: 10.3917/spub.197.0091
Puppo, C., Dentand, L., Leroy, T., Tredan, O., Ahmed-Lecheheb, D., Joly, F., Préau, M. (2019). Cancer survivors providing care: a call for a new approach. International Journal of Care and Caring, DOI: 10.1332/239788219X15677825277121.
Marmorat, T., Rioufol, C., Ranchon, F., & Préau, M. (2020). Encounters between medical and lay knowledge in therapeutic patient education. A qualitative study based on an oral chemotherapy program. Patient education and counseling, 103(3), 537–543. https://doi.org/10.1016/j.pec.2019.10.012
Della Vecchia, C., Préau, M., Carpentier, C. et al. (2019). Illness beliefs and emotional responses in mildly disabled stroke survivors: A qualitative study. PLoS ONE, 14(10):e0223681, DOI:10.1371/journal.pone.0223681.
Di Ciaccio, M. et al. (2019). Accompagnement médical et communautaire dans un essai de prévention biomédicale : vers une nouvelle forme d’éducation ? Pratiques Psychologiques, DOI: 10.1016/j.prps.2018.08.001.
Caillaud, S., Doumergue, M., Haas, V., Préau, M. & Kalampalikis, N. (2019). Past and Present of Triangulation and Social Representations Theory: a Crossed History. Qualitative Research in Psychology, 16(3), 375-391.
Siqueira do Prado, L., Carpentier, C., Préau, M., Schott, A.M., & Dima, A. (2019). Behaviour change content, understandability and actionability of chronic condition self-management apps available in France: a systematic review. JMIR mHealth and uHealth, doi: 10.2196/13494.
Mabire, X. et al. (2019). Pleasure and PrEP: Pleasure-Seeking Plays a Role in Prevention Choices and Could Lead to PrEP Initiation. American Journal of Men's Health, 13(3):155798831982739.
Di Ciaccio, M., Puppo, C., Tremblay, C., Cotte, L., Pialoux, G., Spire, Molina, J.M., Préau, M. (2019). Accompagnement médical et communautaire dans un essai de prévention biomédicale : vers une nouvelle forme d’éducation thérapeutique ? Pratiques Psychologiques, DOI: 10.1016/j.prps.2018.08.001.
Chakra, S., Britel, M., Foray, N., Préau, M. (2019). Radiothérapie et cancer : des représentations ancrées sur le vécu des patients. Psycho-Oncologie, https://doi.org/10.3166/pson-2018-0047
Préau, M., et al. (2019). Does Quality of Life and Sexual Quality of Life in HIV Patients Differ Between Non-treated HIV Controllers and Treated Patients in the French ANRS VESPA 2 National Survey? AIDS and Behavior. doi:10.1007/s10461-018-2237-8
Escriva Bouley, G., Leroy, T., Bernetière, C., Paquienseguy, F., Desfriches-Doria, O., Préau, M. (2018). Digital Health Interventions to Help People Live with Cancer: A Systematic Review of Participant Engagement and Psychosocial Effects. Psycho-Oncology, 27(12), 2677-2686.
Girodet, M., Bouhnik, AD., Mancini, J. Peretti-Watel, P., Bendiane, M.K., Ray-Coquard, I., Préau, M. (2018). Sexual desire of french representative prostate cancer survivors two years fter cancer diagnosis. Supportive Care in Cancer, https://doi.org/10.1007/s00520-018-4536-z
Di Ciaccio, M., Protière, C., Rojas Catro, D., Suzan Monti, M., Chas, J., Cotte, L., Siguier, M., Cua, E., Spire, B., Molina, J.M., Préau, M. (2018). The ANRS-Ipergay trial, an opportunity to use qualitative research to understand the perception of the “participant”-physician relationship, Aids Care, DOI: 10.1080/09540121.2018.1468013.
Bernier, A., Yattassaye, A., Beaulieu-Prévost, D., Otis, J., Henry, E., Flores-Aranda, J., Massie, L., Préau, M., Dembélé-Keita, B. (2018). Empowering Malian women living with HIV regarding the management of their serostatus disclosure: short-term effects of a community-based intervention. Patient Education and Counseling, 101, 248-255.
Préau, M. Doumergue, M. et al. (2018). Acceptability of HIV cure-related trials: the challenges for physicians and people living with HIV (ANRS-APSEC), AIDS Care, DOI10.1080/09540121.2018.1426825
Protière, C., Préau, M., Doumergue, M., Mora, M., Lambotte, O., Spire, B., Suzan-Monti, M. (2017). Will CURE trials introduce an uncomfortable revolution in the field of HIV research? HIV Clinical Trial, 18(4), 174-175.
Bauquier, C., Pannard, M. & Préau, M. (2017). Une démarche innovante pour favoriser la recherche communautaire et faire vivre la démocratie sanitaire en oncologie : les Seintinelles. Santé Publique, 29(4), 547-550.
Marmorat, T., Ranchon, F., Rioufol, C., Préau, M. (2018). Expériences médicamenteuses et expériences du cancer. L'appropriation des anticancéreux oraux par les patients. Sciences Sociales et Santé, DOI:10.1684/sss.2018.0113.
Marmorat, T., Labrosse, H., Préau, M., Farsi, F. (2017). Dispenser des médicaments auprès des patients atteints de cancer à l’officine : Approche représentationnelle du rôle des pharmaciens. Santé Publique, 29(1), 89-93.
Charpentier, N., ... Préau, M. (2016). Freins et leviers de la prise en charge du traitement post-exposition au VIH. Résultats de l’étude ANRS-QualiPEP. Santé Publique, 6(28), 791-799.
Préau, M., et al. (2017). Discussing HIV status: is it easier after ten years of antiretroviral treatment? ANRS CO8 APROCO-COPILOTE. Aids & Behavior, 21(1), 118-128. DOI: 10.1007/s10461-016-1328-7.
Savio, A., Vinet, E. & Préau, M. (2016). Dynamiques intergroupes et changement social autour de l’ouverture du mariage aux couples de même sexe en France. Nouvelle Revue de Psychosociologie, 2(22), 181-192.
Molina, J.M., et al. (2015). On-Demand Preexposure Prophylaxis in Men at High Risk for HIV-1 Infection, New England Journal of Medicine, 373 (23), 2237-2246.
Ben Charif, A., Bouhnik, A.D., Rey, D., Préau, M., Courbiere, B., Mancini, J. (2015). Sexual health problems in French cancer survivors two years after diagnosis – the national VICAN survey, Journal of Cancer Survivorship, DOI 10.1007/s11764-015-0506-3.
Préau, M., et al. (2015). Identity, representations and beliefs: HIV-controllers living on the frontier of good health and illness. Qualitative Health Research, 26(11), 1483-1494.
Britel, M., Foray, N., Préau, M. (2015). Médecine personnalisée en radiothérapie : perception des praticiens, Santé Publique, 27(5), 669-677.
Préau, M., et al. (2015). HIV serostatus disclosure: development and validation of indicators considering target and modality. Results from a community-based research in 5 countries, Social Science & Medicine, 146, 137-146.
Bernier, A., Acosta, M.E., Rojas Castro, D., Bonifaz, C., Jaramillo, S., Henry, E., Otis, J., Préau, M. (2015). Factors associated with contacting HIV/AIDS associations in Ecuador: results of a community study, 2011. Pan American Journal of Public Health. 38(3), 209-216.
Acosta, M.E., Herdoiza, A., Bernier, A., Mabire, X., Préau, M., Otis, J. (2015). Urgent need to scale up and tailor HIV testing offer in Ecuador, Pan American Journal of Public Health, 37(6), 442-443.
Fleury-Bahi, G., Préau, M., Annabi-Attia, T. et al. (2015). Perceived health and quality of life: the effect of exposure to atmospheric pollution. Journal of Risk Research, 18(2), 127-138.
Henry, E., …., Préau, M. (2015). "Was it a Mistake to Tell Others That You are Infected with HIV?": Factors Associated with Regret Following HIV Disclosure Among People Living with HIV in Five Countries (Mali, Morocco, Democratic Republic of the Congo, Ecuador and Romania). Results from a Community-Based Research, AIDS and Behavior, 19(2), 311-321.
Kieto-Zola, E., …, Préau, M. (2014). Factors associated with the HIV voluntary disclosure by PLHIV to their steady sexual partner in the Democratic Republic of the Congo, Pan African Medical Journal, doi:10.11604/pamj.2014.19.276.5304.
Loukid, M., … Préau, M. (2014). Factors associated with HIV status disclosure to one's steady sexual partner in PLHIV in Morocco, Journal of Community Health, 39(1), 50-9.
Lorente, N. Préau, M., ... M., Spire, B. (2013). Expanding access to non-medicalized community-based rapid testing to men who have sex with men: an urgent HIV prevention intervention (The ANRS-DRAG Study), Plos One, 8(4): e61225. doi:10.1371/journal.pone.0061225.
Préau, M. et al. (2013). Two years after a cancer diagnosis, relationship between health related quality of life, coping strategies and spirituality. Psychology, Health & Medicine,18(4), 375-386.
Fleury-Bahi, G., Marcouyeux, A., Préau, M. & Annabi-Attia, T. (2012). Development and validation of an environnemental quality of life scale : study of a french sample. Social Indicators Research, 113 (3), 903-913.
Morin, M., Terrade, F., & Préau, M. (2012). Psychologie communautaire et psychologie de la santé : l'implication de la recherche psychosociale dans la promotion de la santé. Psychologie Française, 57, 111-118.
Préau, M. et al. (2011). Satisfaction with care in HIV-infected patients treated with long term follow up antiretroviral therapy: the role of social vulnerability, Aids Care, 24(4), 434-43.
Préau, M., et al. (2011). Two years after cancer diagnosis, which couples become closer. European Journal of Cancer Care, 20, 380-388.
Mancini, J., Rey, D., Préau, M., Le Corroller-Soriano, A.G., Moatti, J.P. (2011). Barriers to procreational intentions among cancer survivors 2 years after diagnosis: a French national cross-sectional survey. Psycho-Oncology, 20(1), 12-18.
Le Coroller-Soriano, A.G., Bouhnik, A.D., Préau, M., et al. (2011). Does cancer survivos' health related quality of life depend on cancer type ? Findings from a large French national sample 2 years after cancer diagnosis. European Journal of Cancer Care, 20(1), 132-140.
Mancini, J., Rey, D., Préau, M., Malavolti, L., Moatti, JP. (2008). Infertility induced by cancer treatment: lack of information and patient's misunderstanding. Fertility & Sterility, 90(5), 1616-25.
Préau, M., et al. (2008). Suicide attempts among people living with HIV in France. AIDS Care, 20(8), 917-924.
Bouhnik, A.D., Préau, M., Schiltz, M.A., Obadia, Y., Spire, B. (2008). Sexual Difficulties in People Living with HIV in France-Results from a Large Representative Sample of Outpatients Attending French Hospitals (ANRS-EN12-VESPA). AIDS & Behavior, 12(4), 670-6.
Préau, M., et al. (2008). Disclosure and religion among people living with HIV/AIDS in France. Aids Care, 20(5), 521-526.
Préau, M., et al. (2008). Break of trust in patient-provider relationship in HIV infected patients started on a PI containing antiretroviral therapy. JAIDS, 47(4) 467-471.
Préau, M., et al. (2007). Time perspective orientation and quality of life among HIV-infected patients in the context of HAART. Aids Care, 19(4), 449-458.
Bouhnik, A.D., Préau, M., Lert, F., Peretti-Watel, P., Schiltz, M.A., Obadia, Y., Spire, B. (2007). Unsafe sex in regular partnerships among heterosexual persons living with HIV: evidence from a large representative sample of individuals attending outpatients services in France. AIDS, 21(1), 57-62.
Bouhnik, A.D., Préau, M., Schiltz, M.A., Lert, F., Obadia, Y., Spire, B. (2007). Unprotected sex in regular partnerships among homosexual men living with HIV: a comparison between sero-nonconcordant and seroconcordant couples. AIDS, 21(1), 43-48.
Préau, M., et al. (2007). Health-related quality of life in French people living with HIV in 2003: results from the national ANRS-EN12-VESPA Study. AIDS, 21(1), 19-27.
Bouhnik, A.D., Préau, M., Schiltz, M.A., Spire, B., Obadia, Y., Lert, F. (2006). Unsafe sex with casual partners and quality of life among HIV-infected men who have sex with men: evidence from a large representative sample of outpatients attending French hospitals. JAIDS, 42(5), 597-603.
Préau, M., et al. (2004). Health-Related Quality of Life and Patient-provider relationships in HIV-infected patients during the first three years after starting PI-containing antiretroviral treatment. Aids Care, 16(5), 651-663.
Bouhnik, A.D., Préau, M., et al. (2005). Depression and clinical progression in HIV infected drug users treated with Highly Active Antiretroviral therapy. Antiviral Therapy, 10(1), 53-61.
- HAL - Archives ouvertes
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- [halshs-01562525] Identity, Representations, and Beliefs: HIV Controllers Living on the Frontier of Good Health and Illness15 juillet 2017Some people living with HIV spontaneously control the virus without antiretroviral treatment. They are called HIV controllers, and their status places them at the limits of bio-clinical normality. The objective of this study was to investigate HIV controllers’ beliefs and representations of their individual trajectories using a qualitative approach. Fourteen HIV controllers were interviewed. Vertical analysis focused on examining how interviewees’ specific beliefs and representational processes help these patients adapt to their particular situation. Horizontal analysis focused on how patients’ biographic trajectories and identity positioning help them make sense of their situation. Results highlighted that perceiving oneself to be healthy or ill was linked to change or a lack of change in terms of disease perception, beliefs, and representations, when seropositivity was announced. This study of social representations and the processes involved provide crucial elements for health professionals caring for HIV controllers.
- [inserm-01963583] Does Quality of Life and Sexual Quality of Life in HIV Patients Differ Between Non-treated HIV Controllers and Treated Patients in the French ANRS VESPA 2 National Survey?21 décembre 2018People living with HIV who spontaneously control the virus without antiretroviral treatment are called HIV Controllers and their status places them at the limits of bio-clinical normality. The objective of this study was to investigate an unexplored field: HIV Controllers' quality of life (QOL). Using quantitative methods, we compared the QOL of untreated (by definition) HIV Controllers in the ANRS CO18 HIV Controller cohort study, with the QOL of treated patients in the French national survey ANRS VESPA 2. In particular, the physical, social, mental and sexual dimensions of QOL were examined. Results highlight that perceiving oneself to be ill or healthy is linked to stigma and to a lack of self-identification with a social group. Some components of the QOL were significantly impaired in HIV controllers. This study is the first to investigate this field.
- [inserm-03099650] Characterization of Physicians That Might Be Reluctant to Propose HIV Cure-Related Clinical Trials with Treatment Interruption to Their Patients? The ANRS-APSEC Study6 janvier 2021HIV cure-related clinical trials (HCRCT) with analytical antiretroviral treatment interruptions (ATIs) have become unavoidable. However, the limited benefits for participants and the risk of HIV transmission during ATI might negatively impact physicians' motivations to propose HCRCT to patients. Between October 2016 and March 2017, 164 French HIV physicians were asked about their level of agreement with four viewpoints regarding HCRCT. A reluctance score was derived from their answers and factors associated with reluctance identified. Results showed the highest reluctance to propose HCRCT was among physicians with a less research-orientated professional activity, those not informing themselves about cure trials through scientific literature, and those who participated in trials because their department head asked them. Physicians' perceptions of the impact of HIV on their patients' lives were also associated with their motivation to propose HCRCT: those who considered that living with HIV means living with a secret were more motivated, while those worrying about the negative impact on person living with HIV's professional lives were more reluctant. Our study highlighted the need to design a HCRCT that minimizes constraints for participants and for continuous training programs to help physicians keep up-to-date with recent advances in HIV cure research.
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- Responsabilités
et expertises -
Responsabilités actuelles
- Directrice adjointe Unité Inserm 1296 Radiations : Santé, défense, environnement, depuis 2021
- Membre du Bureau éxécutif Projet PIA4 Excellence "SHAPE MED@Lyon", depuis 2022
- Chargée de mission "Stratégie scientifique dans le domaine de la santé", Université Lyon 2, depuis 2022
- Vice-présidente de la Commission Scientifique Inserm CSS6 (2022-2026)
- Présidente de la Commission Scientifique Sectorielle 14 de l’ANRS (Agence Nationale de Recherche sur le Sida), évaluation de l’ensemble des projets de recherche soumis à l’AAP de l’ANRS autour des SHS-Épidémiologie et santé publique dans les pays du nord et du Sud. (2020-2025)
- Membre du Comité d’Évaluation Éthique de l’Inserm (CEEI) (depuis 2016)
- Membre du Conseil National du Sida (CNS) (depuis 2015 ; 2nd mandat à partir de janvier 2022)
- Présidente du Conseil Scientifique de la Plateforme Participative Seintinelles, depuis 2014.
- Membre du bureau de la Plateforme Qualité de vie et Cancer, depuis 2014
- Membre ordinaire du Conseil National Français de Psychologie Scientifique, depuis 2022- Responsabilités passées
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- Directrice Laboratoire GRePS – Groupe de Recherche en Psychologie Sociale, Univ Lyon 2 (2018-2021)
- Vice-présidente de la CSS9- Commission d’évaluation Inserm, 2011-2016
- Membre nommée de la commission « Prévention Éducation et Promotion de la Santé » du Haut Conseil en Santé Publique (HCSP) (2011-2017)
- Membre de la Commission Scientifique Spécialisée (CSS) 6, ANRS, (2014-2018)
- Membre du Comité d’évaluation du HCSP des plans Cancer 1 & 2 (2013-2015)
- Membre de l’Action Coordonnée 46 de l’ANRS (2017-2020)
- Présidente de l’Association Francophone de Psychologie de la Santé -AFPSA- (2011-2017) - Expertises scientifiques, conseils scientifiques
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- Membre de la Commission d'expertise 4, La Ligue contre le Cancer, depuis 2023
- Membre de comités scientifiques de l’Agence Nationale de la Recherche
→ France Liban, 2021 ; ANR COVID RESILIENCE, 2021 ; RA COVID mai 2020 à janvier 2021 ; Santé publique, 2017, 2019
- Présidence de comités de visite HCERES, 2015, 2017, 2019.
- Membre de comités de visite HCERES depuis 2011, dont chaque année au titre de membre de la CSS9 puis CSS6 Inserm.
- Expertise de projets : Fonds de Recherche en Santé du Québec (FRSQ), CHUM de Montréal, IRSC, Québec, FNRS (Suisse)
- Expertises scientifiques régulières : IRESP ; La Ligue contre le cancer ; INCA ; Fondation des Maladies Rares ; Agence de Biomédecine ; Université de Bruxelles ; Université de Nantes ; Université Grenoble Alpes ; Région Lorraine ; Cancéropôles PACA, Grand Sud Ouest, Grand Ouest, CLARA
- Membre du Conseil Scientifique du Baromètre Cancer 2015
- Membre du Conseil Scientifique de l’AAP Santé Publique, ANR, 2017-18 - Mandats régionaux
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- Coordinatrice scientifique de l’axe A « Évaluation, perception des risques et prévention des cancers du Cancéropole CLARA (2013-2020)
- Coordination de l’axe Santé de l’Institut des Sciences de l’Homme, Lyon, 2015-2020
- Membre élue de la Commission Recherche de l’Université Lumière Lyon 2 (2016-2020 puis 2021-2025)
- Membre élue du Conseil Académique de l’Université Lumière Lyon 2 (2016-2020 puis 2021-2025)
- Présidente de la Commission Disciplinaire EC, Université Lumière Lyon 2 (2016-2020) ; vice-présidente (2021-2025)
- Membre du Comité d'Intégrité Scientifique, Université Lyon 2, depuis 2021